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Turn the Corner Summer Newsletter 2006
 
Announcement!

Please visit our website at www.turnthecorner.org to view our new design! We have just recently launched this site in July.
Message from the Founder – Recapping a Tremendous Year…

I am amazed by the significant progress in Lyme disease research and education that has been facilitated by the Turn the Corner Foundation since 2002. We have been able to raise awareness to millions of people through extensive media campaigns and the physicians training program.

Many people do not know how widespread the Lyme disease epidemic is and the likely chance that someone they know may be affected. Lyme disease is a drastically growing vector-borne illness. It is projected that people are infected with this debilitating disease at a rate five times greater than that of AIDS. Lyme disease may be difficult to diagnose because many of its symptoms mimic those of other disorders. Many people afflicted with this disease find themselves going from doctor to doctor wondering what is wrong with them.

Diagnoses can be confirmed based on a clinical assessment and proper blood tests from a Lyme-literate doctor. Please check out our interview with Chris Beach on our website, who details her frustrating story of living with Lyme disease for seven years before learning about Turn the Corner, which helped steer her in the right direction to be tested and visit a Lyme-literate doctor. We also invite you to visit the most up-to-date version of the Diagnostic Hints and Treatment Guidelines for Lyme and other Tick-Borne Illnesses, written by the world-renowned Lyme-literate physician Dr. Joseph J. Burrascano Jr.

Our educational events have been a successful way to get the word out about Lyme disease. Our next educational event will feature Dr. Burrascano and will take place on Saturday, August 19, 2006 in Bridgehampton, NY from 3 PM – 5 PM at Board of Directors member Dave Reichenbaum’s home. Please visit our website for details. Stay tuned for future educational events and don’t miss our debut fundraising gala, Unmask A Cure, which will take place at Guastavino’s, a sleek New York City Eastside hotspot on November 2, 2006.

Thank you again for your support and we look forward to continuing to work together to make a difference against this devastating disease.

Staci Grodin
Founder
Turn the Corner Foundation
Fundraising Events – Creating Awareness…

Our Lyme Disease Educational Awareness Series has been hard at work informing community members about the dangers of Lyme disease. Our first education event for this year was hosted by Nancy and John Crotty in Rye, NY and was a great success! We debuted our new film on Lyme disease, had the opportunity to hear Dr. Richard Horowitz speak about the dangers of Lyme disease, and had a great question and answer session. The Crotty’s graciously hosted over 70 guests at their beautiful home and provided delicious hors d’oeuvres and cocktails. Many people gave generously to the Foundation throughout this special evening. Some key discussion topics included:
  • How to protect your children from Lyme disease;
  • How to tell if your child has Lyme disease;
  • What to do if you or someone in your family is infected; and
  • The latest information on Lyme disease and its treatments.

Please click here for a listing of the upcoming communities we will be visiting; and if you are interested in sponsoring this program in your community please click here.

We are also very happy to announce that the fifth annual fundraising event will be moving from the tennis courts to a tasting-style dinner event entitled Unmask A Cure. This new and exciting event will be held on November 2, 2006 at Guastavino’s, a sleek hotspot located in the heart of New York City’s Eastside. If you are interested in sponsoring or volunteering for the event, please email us for more information. If you would like to purchase tickets to the event, please click here.

Making a Difference

Physicians Training Program


Turn the Corner Foundation is pleased to announce our Physicians Training Program in conjunction with The International Lyme and Associated Disease Society (ILADS). Through our programs physicians, PA’s, RN’s, nurse practitioners and naturopathic practitioners have the opportunity to train with a designated ILADS Lyme disease literate doctor or other approved person. When accepted by the Lyme disease literate trainer, the clerkship participant can expect to receive reimbursement for travel plus a $200 stipend per diem.

All candidates must submit receipts to the ILADS business office including a brief form indicating what was learned and how the training might influence their future practice.

Interested parties should contact Barbara Buchman from ILADS at Lymedocs@aol.com. She will supply you with the necessary forms to begin your training program.

We are excited to help turn the corner on Lyme disease by training these new health care professionals. The trainee will be able to take this newly acquired knowledge and treat people in their communities. Increasing the amount of Lyme disease literate doctors is essential to treat the thousands of ill patients domestically and internationally.

For more specific information on the money that has been granted to date, please click here.
Volunteer Spotlight – Giving Time for a Wonderful Cause…

Nancy Perry Crotty, member of the Board of Directors for Turn the Corner Foundation

In this issue, Nancy Perry Crotty is our Volunteer in the Spotlight. Nancy has gone above and beyond her duties as a member of the Board of Directors and truly exemplifies the qualities a Foundation looks for when working with volunteers. We had a chance to catch up with Nancy this summer and she filled us in, below, on her battle with Lyme disease and her involvement with TTC.

I am 44 years old and am married with four children. I have 12 year old boy-girl twins who were born with Lyme because I was infected during my pregnancy and not treated properly. I also have an eight year old girl and a six year old boy.

I graduated from NYU with a Bachelor of finance and marketing. I then worked on Wall Street for seven years before going back to school for my Masters degree in Public Service at NYU. I received a Masters degree in public finance and public health with the intent to work in the public health arena. While in graduate school, I worked at the Ronald McDonald House. This organization houses children being treated for cancer in New York tri-state area hospitals and their families. Afterwards, I left to focus on my family.

I have traditionally been a very active athlete until my sickness made it impossible to participate any longer. I was a runner, participating in several marathons and triathlons, until I had to give it up completely in 2001. My husband is also an avid tri-athlete and runner and we used to spend most of our free time running, racing, hiking, biking, swimming, and traveling. Now I take the kids and watch my husband race if I am having a good day. Most of the time my health doesn't allow for any traveling or high energy outings. Now, for the first time in years, I have hope that I might one day rejoin my husband in races.

I am a new member of the TTC team, having just joined a few months ago. So far, on behalf of TTC, I have gone to the local middle school and high schools in Rye and have spoken to multiple health classes about prevention, detection and treatment of Lyme disease. Staci and I hope to use TTC to educate students at schools in high risk areas on a widespread basis in the future. I have also had an article published in the local Rye paper about TTC and Lyme disease. In May, I hosted an educational event featuring Dr. Horowitz, of Hyde Park, NY, at my home in Rye, NY and it had a wonderful turnout. I am here to be instrumental to TTC in the best ways possible, now and in the future. I hope that through TTC I can help others by raising money to further much needed research, by paying for the training of doctors in becoming Lyme literate and by helping those that are sick get proper diagnosis and care.

I have been fighting this disease for 13 years, intensely for 5 years, and Staci and TTC have enabled me to get the best care possible. As a volunteer and member of the Board of Directors, I would especially like to work with Dr. Burrascano, author of Diagnostic Hints and Treatment Guidelines for Lyme and other Tick-Borne Illnesses. He is a member of the Medical Advisory Board for TTC and his expertise on Lyme disease and support of the Foundation have been nothing short of remarkable. On a personal note, I also owe much of my good health to Dr. Burrascano. I feel that he is the man that needs to be cloned in order to save so many very sick people. Dr. Burrascano will be honored this year at our fundraising event, which will be on November 2, 2006 at Guastavino’s, a sleek New York City Eastside hotspot.

I plan to get better and dedicate my wellness to my family, to all of the sick people out there who need help and to the doctors who have given so many people back their lives and given me hope when there was none. I admire what Staci and Rich Grodin, and all of the TTC members of the Board of Directors, have done in turning a horrible life experience into a vehicle to help many people. I hope to follow in their footsteps.
Special Thanks – It Could Never Have Happened without the Help of…

Thanks to everyone that has contributed to the success of this Foundation. We could not have made this tremendous progress without your support. If you would like to make a donation to the Turn the Corner Foundation please feel free to send a check made payable to the Turn the Corner Foundation and mail it to 15 West 63rd Street, Suite 23A, New York, NY 10023 or visit the donate section of our web site at http://www.turnthecorner.org/donatenow.htm. 
 
 
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